4/2/16 at 8:35 ish a.m. I was woken up to Kinley making a subtle noise. I rolled over to check on her. When I saw her with my oh so sleepy eyes, I was suddenly fully awake and grabbing my phone to record what was happening. She was doing it. Again. I sat there recording my sweet babies body twitch, grunt, shake, and be completely unresponsive. 20 seconds, 30 seconds, 1 min, I'm yelling for Caleb who was in the shower getting ready for work, 1 min 30 seconds, 2 minutes, 2 minutes 11 seconds and it was finally over. She took a big breath as if it were a sigh of relief that it was over. I pick her up and Caleb comes out of the bathroom. I just started to cry while I held my baby. I showed Caleb the video since he didn't witness what I had just seen. He was running late for work. What do you say? What do you do? A kiss and a "have a good day, I love you, I'll keep in touch with what happens" and he was out the door. This is the 3rd time in a week and one day. I shoot my sister and mom a text and told them what had happened. I call the doctor and made an appointment for the next opening with my doctor. After a little bit, my mom comes over. While she held Kinley, she watched the video so she could see what is going on. We both ended up crying because it is hard to watch. We made a game plan on what to do.
I can't sleep because I'm scared that when I finally do fall asleep, something will happen and I won't be there. I can't leave her asleep in another room because I fear she will have a seizure like episode and me not be there. I can't leave her in another room long enough for me to use the bathroom because I'm scared something will happen and I won't be there. I feel like because what is happening, I have become a bit paranoid, more anxious than I already was, nervous, and scared to know the outcome.
Monday we are seeing another doctor in hopes of him directing us in which way we need to go. I fear the testing that will need to be done to figure out what is going on. I don't want to see my baby uncomfortable or in pain. I'm sure it will include blood work, possible EEG, MRI, CAT scan. Something along those lines. It's terrifying. I wish I could take it away. Until we know what exactly is going on, all we can do is pray, pray, and pray some more.
So much more than a Coat by Bailey
2 years ago
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